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| Skate Across America (157 Posts)
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Skate Across America for Lowe Syndrome |
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On 3/4/2004 WesE
wrote in from
(208.59.nnn.nnn)
I think it’s pretty cool that people are finding this forum via internet searches of Lowe Syndrome. Jack’s vision of the disease getting more attention due to the SAA tour is solidifying.
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On 3/4/2004
student
wrote in from
(24.7.nnn.nnn)
i am truly sorry to hear that people would use a site that is as a wonderful tool as this to ridicule/spite/hurt others. I assure you and any other readers that that is not my intention at all and f.y.i. if anyone chooses to disclose any information to me, i will not disclose your name/email/anything else you would prefer that i didn't, although I have to list this website as my source in my project. :)
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On 3/4/2004
hugh r
wrote in from
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Fully understood and agreed with on that... I just requested a little more info because of the mean-spirited direction that occasional posts can take around here.
There is a gentleman who posts here who has a lot of personal experience with Lowe Syndrome... hopefully he'll be willing/able to provide you with all the info that your looking for... good luck on your research... HR
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On 3/4/2004
student
wrote in from
(24.7.nnn.nnn)
hugh r,
thank you for responding, i appreciate it.
my email adress is Disney_Luver@comcast.net and, no offense meant, i do not wish to reveal the location of my school on the internet for obvious safety reasons.
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On 3/4/2004 hugh r
wrote in from
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How about an email address and your name "student"... also, where are you attending school?? HR
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On 3/4/2004 a student
wrote in from
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To Those Whom it May Concern:
I am a high school student taking a honors biology course. I have been assigned a project to research a genetic disorder. The syndrome I was assigned was Lowe Syndrome. I have created a brochure explaining things such as the symptoms, mode of inheritance, description, treatment, and detection of Lowe Syndrome. These brochures will be used to further people’s knowledge of genetic diseases and the people who live with them. Since my teacher wants us, not only, to understand what the genetic disease is, but also to understand how the people afflicted with this disease and those around them live, she also assigned an interview and a reflection paper along with the brochure. I humbly ask you, as a student in need, to take a few moments of your time and answer however many of the following questions that apply to you or you are comfortable answering. I understand that this is a sensitive issue and i assure you I have tried my best not to offend anyone with these questions. I can only express to you my immeasurable thanks and the guarantee that I will try my best to further the knowledge of this genetic disease.
thank you once again for your time and effort
Interview Questions:
To parents of children with Lowe Syndrome:
1- Did this affect your planning for your child’s future in any way?
2- What was/is the hardest symptom of Lowe Syndrome you/your child has to deal with?
3- When your child was diagnosed
with Lowe Syndrome, did you look for as much information as possible on the subject or just accept the information doctors/geneticists told you?
4- If you answered yes to the first part of the former question, did you use any web sites or support groups you would recommend to other parents whose children are diagnosed with Lowe Syndrome?
5- Did having a child with Lowe Syndrome affect any specific aspects of your life other than the brining up of your child? If so, what aspects?
To those affected with Lowe Syndrome:
1- Is/was it hard for you to accept that you are different than other children/adults?
2- What do you hope will come out of the researching of Lowe Syndrome?
3- Did you think a cure will ever be found?
4- What is your opinion on the subject of genetic therapy, cloning and other aspects of genetic therapy, experimentation, or cloning?
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On 3/3/2004 John
wrote in from
(139.177.nnn.nnn)
Thanks for the info! Can someone from the SAA team use this forum to keep us informed when Nat. Geo. airs this program in the U.S. Thanks!
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On 2/26/2004
Nick
wrote in from
(66.87.nnn.nnn)
The footage has been edited. It will air first in Europe and Asia sometime soon.
Jack is planning a premiere party after the first airings overseas.
I've never seen a minute of the footage, so it'll be completely new for Josh and I.
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On 2/26/2004 John
wrote in from
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Does anyone know if National Geograhic ever aired the video footage of the SAA. If not,when are they planning to show it? Thanks.
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On 10/6/2003
Jack
wrote in from
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Hello Everyone,
If you made a mileage pledge, the distance we skated was 2,774 miles. If you could please figure out your total contribution and pay it via Paypal or by check it would be greatly appreciated. Payment details are on the Contest Calendar page.
Thanks again for all your support!
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On 9/1/2003
Jack and the SAA Team
wrote in from
(63.93.nnn.nnn)
Hello all,
We want to thank everyone who supported our trip; sponsors, families, friends and individual pledge makers.
Sasha, thanks for your generous contribution.
We are currently going through 25 hours of video footage, after we log everything it the tapes will be sent to National Geographic for the editing process.
We will also be auctioning off most of our gear with in the next couple of weeks on EBAY.
I would like to ask all of you to make one last shot at helping us raise even more research funds, please send the link below to everyone on your email list.
http://www.asphaltplayground.com/lowe.html
Thanks,
Jack and the SAA Team
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On 8/26/2003
Lansing
wrote in from
(24.147.nnn.nnn)
I add my congrats to the team!
Last week I flew from Boston to Phoenix sitting next to a Canadian guy who had *just* completed a trans-continental trip on his bike the day before. When I told him what you guys were doing, he was in total awe. Having just done it on a mountainbike, he simply couldn't believe that it could be done on a skateboard in nearly the same amount of time. He estimated it would take 2 months. When I told him it took you guys less than 4 weeks, he shook his head in disbelief.
Kudos again!
P.S. Disappointed that I didn't see ANY media coverage of it anywhere. Lame.
Lansing
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On 8/26/2003
Nick
wrote in from
(66.87.nnn.nnn)
I just got back home from a 3-day drive BACK across the country from Virginia. Dropped Josh off at the Greyhound bus station on Saturday morning for the 4-hour bus ride to Wilmington, NC. The rest of us had a 3000 mile drive ahead of us in the now not-so-mighty white Windstar, which is now filthy dirty and stinky. Powered through for 34 hours to Denver, spent the night at GF's abode in Golden (thanks, Gary and family!), then on to California. We dropped Scott off around 3AM, then crashed at Jack's for the night.
Super-duper extra-special thanks to all the sponsors and supporters that helped us out on the trip. We could not have done it without you.
Keep pestering the media to let them know what we have done. Imagine the donations that will come pouring in if this story goes national. Imagine a cure for Lowe Syndrome. All it takes it time, money, effort, and imagination. If you can supply any of those things, then our efforts have been successful.
Skateboarding is the medium, but the message is Lowe Syndrome.
Skate for fun only!
- Nick
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On 8/25/2003 hc
wrote in from
(130.65.nnn.nnn)
congrats to all you guys,
simply amazing!
I gotta see some videos of this.
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On 8/25/2003
Richy & Maria C.
wrote in from
(198.81.nnn.nnn)
Just wanted to congratulate Jack and the SAA Team for completing their awesome journey! I'm sure all that hard work will go a long way in furthering the efforts for Lowe Syndrome. See you all at the Worlds!
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On 8/25/2003 Skategeez
wrote in from
(208.242.nnn.nnn)
Thomas, thanks for the update and information. I do mostly distance boarding, but just on a daily basis (15-20 mile rides). I hope to get into more multi-day stuff soon, which is why their cross-country skate intrigued me so. (I have some multi-day trek running experience.) I would eventually like to talk on the phone to Jack about his amazing feat and get information and insight and inspiration. When I cruise on my board, I usually do about 10 miles per hour and keep it up for a couple of hours. I don't bomb hills at my age, which may slow me down somewhat. Nothing too great, but lots of fun.
One other question about the cross-country skaters. Did they push up hills or walk the steeper hills? I'm thinking Rockies and Appalachians must have been a bItch to chug up. Anyone know???? Thanks!
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On 8/24/2003
Brady
wrote in from
(66.21.nnn.nnn)
You guys, Jack, Josh, Scott, and Nick, ROCK!
Congrats on your feats, the record time of your travel, and for the donations you procurred for the Lowes Sundrome Foundation.
A big Knucklehead salute (OUCH!!) to all of you!
Also a big hey out to Rene` @ longskate.com
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On 8/24/2003 HTML Problem
wrote in from
(168.103.nnn.nnn)
http://www.bahneskateboards.com/ebay/001a.jpg
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On 8/24/2003
Michael
wrote in from
(195.92.nnn.nnn)
I'll second that...its extremely hard skating hills you don't know. When I've chatted to friends over here (UK) about the distance travelled they are amazed. It is the same distance as from London to Baghdad!!! No one over here would even consider that distance...its insane!
I thought I was having to rough it when I did LA to NY on a Greyhound Bus. 4 days of hell. Now imagine doing it on a skateboard.
I would love to see Jack and the team do an honoury sweep down Morro main street at the Worlds. If its legal in California we should get the buckets out to collect from the crowd each day and announce to spectators what was achieved.
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On 8/23/2003 thomas
wrote in from
(216.51.nnn.nnn)
"On 8/21/2003 Skategeez wrote in from 208.207.xxx.xxx:
Could someone tell me if all four skaters are riding simultaneously (ie, each doing the entire distance) or are they riding it as a relay team? If it is as a relay: they are reportedly trying to set a world record, is the current world record for a relay team as well? Is there an individual record for a cross-country skate?"
They did it relay style, 2-4 mile shifts I hear. I don't know about the records. I do know the speed is ludicrously fast. Have you ever done distance skating? Very hard to maintain 10 mph over 5 mile distance. Climbing hills is way slower and harder than on a bike, downhills way more dangerous due to lack of brakes and not knowing the conditions ahead. 15 mph average is a good average on a touring bike with 27" wheels. They were doing it with 4" wheels and no gearing. Too be quite frank, I am surprised someone wasn't killed or seriously injured as I had ridden almost the same route solo on a bicycle 8 years ago.
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On 8/23/2003 Paul Dunn
wrote in from
(64.4.nnn.nnn)
Congratulations SAA team!
You are now a part of history.
Bathe in it!!!
--PD
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On 8/23/2003
Chris Chaput
wrote in from
(66.116.nnn.nnn)
Congratulations to Jack, Scott, Nick and Josh on their fantastic voyage. It seems as if those guys flew across the country. I was thinking about joining them for a leg of the journey shortly after hearing about their departure from Oregon. The next thing I know, they were already in Ohio and then West Virgina. Where does the time go?
I am proud to have been able to help sponsor this worthy cause. It's truly a wonderful thing to see so many people in the skateboard industry got behind these guys. The old-school/longboard/racing segment is the coolest.
Thanks for leading by example and being great role models for those who have to take on special challenges. I have total respect for everyone who helped to make this project the success that it was.
Rest up boyz, the Worlds is coming up fast!
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On 8/22/2003 Jack and the SAA Team
wrote in from
(172.136.nnn.nnn)
Richmond to Williamsburg
This was our easiest day by far, only around 50 miles of skating. Perfect pavement the whole way, flat or slightly downhill. We actually had to slow down in order to give the press time to set up.
John Dillon was waiting for us at the finish with ice cold Cokes and Gatorade. He also treated us to lunch at the Cracker Barrel. Thanks, John. Also thanks to Wes E. for helping out with filming.
Relaxed and swam at the motel pool, then went to the movies.
I hope everyone noticed the incredible contribution that Rene Bruce of longskate.com made yesterday, .25 cents per mile and 5% of longskate.com sales for the rest of the year. Thanks, Rene. Some of you may not know that if Rene hadn't stepped up to the plate in 2001 the World's would have never happened.
For me it was a bittersweet day, skating those last few miles reflecting on the trek and my skating career in general. I am blessed that I was able to make this ride, and blessed to have so many friends and strangers who made it all possible. And most of all my wife Maurine. There are not many wives who would put up with and support all my crazy projects...I love you Maurine.
I would also like to thank Nic, Scott and Josh for taking a month out of their lives to make the trek. We had our moments, but were always able to focus on what the trip was really about...honoring my son, Jack, and raising awareness and research funds for Lowe Syndrome.
Please take a moment and send all your friends and family the link to the site... www.asphaltplayground.com/lowe.html
even the smallest donation will help.
Thanks to everyone out there for all your support.
Jack and the SAA Team
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